From Robyn

The following post is from Robyn, cut and pasted from her comments. I guard the codes and only allow her to have access for 10 minutes twice a day (just kidding!)

Good morning everyone,
I'll try to answer all of the questions here, because this is the only spot I can comment on for this thread. It's so good to hear from all of you!

Kelly, the seizures that he had the other night - the 5 sub-clinical seizures - were real spike & wave seizures, not focal slowing. The doctors want him to have a few of his "regular" seizures so that they can see if these present themselves in the same place.

Debbie,
We don't know as of yet if Josh will be going into the OR on Thursday to have the wires removed, etc. If he does, he won't be up for visitors that day. It's actually considered a second surgery. He will stay in the ICU the night after the surgery, and then be moved to a regular hospital room. We would love to see you, so feel free to call or email and we'll work something out. (My cell phone # is 518-265-2319) Love to all, Robyn

Lollie,
One of the hardest things about this hospital stay is that Josh cannot get out of bed at all. He can't even walk to the bathroom, which is abut 50 feet away from his bed! He's incredibly bored, but also tired and a bit crabby, so he doesn't really feel like doing anything. We are trying to coax him into playing games, etc. but it's difficult.

Jerry and I are so fortunate to have an apartment right next store to the hospital. It's literally 2 minutes away! After the first night in the ICU, we have been sleeping in the apartment. We know that if Josh needs us, we could be back here in minutes, and Josh really does need a break from us! We definitely are not his favorite people to be around lately ;-).

Thanks so much for all of your thoughts, and questions, and care. You're the best! We love you all.