Gammaglobulin II

Josh had his second gammaglobulin infusion yesterday in NYC and it went very well. He had no ill side effects and appears able to tolerate it okay. The plan now is for him to have an infusion at home every two weeks. A visiting nurse will come and do the work. It will be 2-3 months before we know if the treatments are helping his Epilepsy or not. Happy Holidays to all!

A night in the ER

There's nothing like a stay in the emergency room to clear your mind and put your life in perspective. We are very grateful that Josh is home and well. He was discharged from the hospital this morning and is not experiencing any more side effects from the IVIG treatment.

Last night was quite an ordeal. We were told by the ER doctor that Josh needed to stay and be monitored, in case he was going to have heart failure. They took an EKG, some blood work, and a chest X-Ray and found nothing wrong.

Dr. Rubinstein would like Josh to have the next treatment in his office, instead of at home as originally planned, so that Josh can be observed. He said the side effects Josh was experiencing are very rare. (I say Josh continues to confound the best medical minds in the world.)

We have had a long and stressful few days and are trying to chill this weekend and get back to normal, whatever that is.

Overnight in the ER

Josh had his first IVIG treatment in NYC yesterday with Dr. Rubinstein. When we got home, he started feeling tightness in his chest and shortness of breath. We could not reach Dr. Rubinstein, so we brought him to the ER, where they wanted to keep him overnight for observation. As of 7 a.m. this morning, he is okay, and we expect him to be discharged later this morning. More details later.