There's nothing like a stay in the emergency room to clear your mind and put your life in perspective. We are very grateful that Josh is home and well. He was discharged from the hospital this morning and is not experiencing any more side effects from the IVIG treatment.
Last night was quite an ordeal. We were told by the ER doctor that Josh needed to stay and be monitored, in case he was going to have heart failure. They took an EKG, some blood work, and a chest X-Ray and found nothing wrong.
Dr. Rubinstein would like Josh to have the next treatment in his office, instead of at home as originally planned, so that Josh can be observed. He said the side effects Josh was experiencing are very rare. (I say Josh continues to confound the best medical minds in the world.)
We have had a long and stressful few days and are trying to chill this weekend and get back to normal, whatever that is.
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