Back in the PICU. Josh got what I like to call "the corner suite" in the PICU. It was the bed he requested because it has its own mini-bathroom/toilet. Everything is going well. Josh had a peaceful night and is on a morphine pump for his pain. The doctors read his EEG and he has not had any seizures yet. Dr. Weiner has been in twice and said Josh is doing well.
They will be cutting Josh's anti-seizure med, Felbatol, in half today and then eliminating it tomorrow, in an attempt to cause seizure activity. Just in case you forgot, the point now is to get seizure activity, so the docs can find the focal point of the seizures in the brain.
While things move very slowly at NYU sometimes, Robyn and I are very confident that Josh is getting the world's best medical care. Just to prove the point, Dr. Devinsky was in this morning to take a look at Josh's case. He is the head of the NYU Epilepsy Center and one of the world's leading authorities on Epilepsy. He is the Derek Jeter of epileptologists...or maybe the Babe Ruth (gotta get my baseball analogy in).
Robyn and I had a very good night's sleep in the apartment last night and we are feeling rested, hopeful, sometimes fearful, and ready for the long haul.
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