The roller coaster continues.
Dr. Weiner told us tonight that the team of docs reviewing Josh's case concluded that there was not enough benefit to doing the resection, based on the information that is currently available. We thought that "the case" was already made for a resection, based on the one seizure last week, last year's seizure data, and inter-ictal info. But actually "the case" was only a proposed case that was presented to the team, which includes the top docs at the Epilepsy Center.
So it looks like Josh will have surgery Friday, either to remove the electrodes and nothing else or to do a resection.
We are all pretty shell-shocked from the news. Josh is very disappointed. We are trying to remain positive, in the face of some very difficult news. We are hoping desperately for more seizures between now and Friday.
Tuesday, May 25, 2010
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You are all close in our hearts- sending our love and support- Amy, John, Jemma, Leah xoxoxox
ReplyDeleteI am so sorry to read this. I will be hoping desperately for seizures too!!
ReplyDeleteHope the night went peacefully for you and Robyn and that the day brings what you most hope for
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