Today is Day 16 in the PICU. No new seizures, but we're hoping for at least one more before the surgery. Josh was sleep deprived again last night and has undergone photic stimulation (flashing lights) several times. The team of docs is meeting this afternoon at around 3:30 p.m., so we may know more later today or tonight.
We continue to be blessed by the support we have received from friends and family. The rabbis paid us a visit last night, after a long day of travel for them. We are so fortunate to have their friendship, support, and spiritual guidance. Robyn and I say a misha berach (a Hebrew prayer for healing) for Josh (and others)every morning and every night, but it somehow feels more official when Rabbi Linda and Rabbi Jonathan make the prayer in person by Josh's bedside!
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Waiting and uncertainty are the toughest kind of stress one can endure. No matter what the rest of us can say or do for you, you are doing more for us by serving as models of strength, endurance and heroic spirit. I'll be praying for a breakthrough today to guide Josh's surgery to even more productive outcomes. Much love.
ReplyDeleteI just wanted to add that I have been "in the loop" through Ivy's laptop- Josh's blog is always on the screen so we can see the progress. We all are rooting for a late-inning (Yankees style?) walk-off! Love and health to all.. ken
ReplyDeletehi guys.. so glad you have this blog to keep us all the in the loop.. JOSH! good luck w/ the surgery.. we are all thinking of you.. love you.. lollie mickey peri avi
ReplyDeleteLove, hugs,kisses to you all.
ReplyDeleteWith lots of love,
Maddy
I will try to send you a text or call, but just in case......... I know what you want, BUT you have put your faith in these medical professionals for a reason. Maybe this journey is important for reasons that you don't know yet. Everything WILL work out the way it should. Don't be discouraged. Love to you all.
ReplyDeleteGod grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.
ReplyDelete