After finishing our second weekend in the PICU and two weeks after the first surgery, we are starting to see light at the end of the tunnel. The team of doctors are putting together a case based on Josh's one seizure, information from his sub-clinical seizures in July 2009, and inter-ictal (between seizures) activity on the EEG.
Based on this data, it looks like they probably will do a resection of part of Josh's right frontal lobe. The surgery would be Wednesday or Friday of this week. The essence of the decision is that removing part of the right frontal lobe will reduce his seizures, but not completely eliminate them. It is not a home run or a slam dunk, but perhaps a ground rule double or a couple of free throws.
It's nice to know that Josh has not gone through all of this for naught, that they can help him in some way, even if they can't find and resect the entire focal point of his seizures.
There are still a number of questions and issues to work out, but this is the latest news as of this morning.
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Monday morning check in. I am glad to hear they have enough information to do something, in hopes of helping Josh. I'll be checking in.
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ReplyDeleteI am sorry this isn't a slam dunk case, but I hope that even a partial resection will give Josh some relief.
We keep imagining the best possible outcome. Glad to hear you are closer to the end of this ordeal than to the beginning.
ReplyDeletexo Ivy