Today is the beginning of our second week. Time passes slowly here and each day moves into the next in a blur. Robyn did a laundry yesterday because we've run out of clean clothes and today we need to buy a new bar of soap because we are running out. These are my mundane markings of time, with every day and night spent in the PICU.
Still no seizures, but Josh is in good spirits. He's been laughing at my jokes lately, which is a big change from the past few months, when he thought I was just plain annoying. We are hoping he will crack open his books and perhaps try to do some school work today. Maybe the stress of school will provoke a seizure! We are also hoping to have the recreational therapist come in today and get Josh involved in some kind of activity.
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Josh, Jerry, and Robyn:
ReplyDeleteJust want to let you know that I am thinking of you and hope to see you back in Saratoga before long.
I will be taking over as chair of the Caring Community in a few weeks. I will connect with you to see how the CC can continue to help with whatever you might need.