It's early Sunday morning and I'm sitting by Josh's bedside. He is sleeping peacefully, his head wrapped in gauze, dozens of wires sprouting from his head, and a half-dozen wires and tubes attached to his chest and arms.
Josh's medical status has remained the same, which is good news. The only change we would welcome is a seizure or two or three.
He got a very special surprise visit last night from Jay and Nicole, the parents of his PICU roommate last year. They came down from Poughkeepsie to see him! Josh has been in touch with them, but we didn't expect the visit last night at all.
Last year, Jay and Nicole were part of the "Party in the PICU." There were three families with the same doctors, all had children recovering from Epilepsy surgery. The bedside curtains were almost always open. We shared meals together, we shared heartache together. This year, Josh has the entire four-bed PICU "pod" to himself.
Robyn and I also got a blast-from-the-past visit from our high school friend, Randy, who broke through his dislike of hospitals to come and visit. His wife, Annette, a college friend of ours, has already been by three times!
I can't express how much it means to the three of us to have all of your love and support. Every day we find new evidence of the love that surrounds us.
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Hi Robyn & Jerry---glad to hear that Josh is having progressively better days and praying those will continue (ad infinitum!) Just on the way to the weekly Brotherhood gathering, so know that there'll be multiple Blue Blanket prayers being said for sure! Talk soon. Love, Steve & Julie
ReplyDeleteJosh,Robyn and Jerry,
ReplyDeleteI have been praying for things to go smoothly. You all have been through so much. We (the family) have been reading your blog which is wonderful to be able to keep up with your progress. Josh you are such a brave young man. You have such a good outlook and that has helped with your recovery. You are blessed with so much love from your family and friends. Which I'm sure you know how we all feel about you! Ken was home for a quick weekend and he wants you to know he is thinking of you, and will talk to you soon. He has 2 more tests this week and then he will be done. Robyn, and Jerry I want you to know everyone in group has been praying for Josh and will continue to do so. Thinking of you often. Love, Sue,Jamie and family. Just talked to my Mom and Grandma Shirley sends her love to you Josh.